https://www.facebook.com/groups/998559130772179/permalink/1056041698357255/
Today was Kam’s Eval for school. (5/24/22) We only started this process because family & therapists were asking. We knew school wasn’t right for Kam. Thought what’s the point if Kam is unable to do mostly anything? To my surprise Kam was able to do all they tested him for. Still new to Kam’s recent progression. We are in new shock that maybe school is right for Kam 🤯
When Kam was a baby he was put on the ketogenic diet. He was progressing as a healthy baby should…until he was put on Quinidine. A nightmare, it stopped all his progression and reversed it. Didn’t help he was on Phenytoin which interacts with Quinidine.
Kam is now what I would call in the “newborn phase” where he’s over sensitive now to sound and touch and responds to the slightest thing, complete opposite how he was before. I truly believe adding the Blueberry powder opened the pathway up for Kam so it gave him the ability for Bacopa Monnieri to work at its max ability.
First, Kam doesn’t aspirate, but everyday I’d feed him he would cough which would lead to throwing up. Since adding this Bacopa at 1/2 a Veggie tab in the morning (also seizure supplement) Kam rarely coughs or throws up. It’s life changing for us. It has made him more coordinated, increased his ability to think, learn, and his memory has improved, he only had this when he was a baby. These are the effects from Bacopa because it can increase certain brain chemicals as many Nootropics do.
Certain supplements work synergistically together which means they work better taken together vs alone. The Blueberry Powder, Bacopa and Black Cumin Seed oil work better together than alone. I increased Kam’s Black Cumin Oil from 40mg/kg/8hr to 50mg/kg/8hr, within 3 days or so Kam has close to normal eye tracking (has to still work on moving his head with the tracking) which is huge because I’ve been focusing on PT not OT. Now the OT is so much easier because he’s following and tracking. And he can stand for 20 min easy before his legs get tired. It was only 5 minutes he could take free standing. He is also much more expressive verbally.
Overall Kam is more “there” and I don’t think there’s any way he could be more “there”. We found Kam’s combination. He’s a totally different kid and has a chance at a more quality life. I noticed the most drastic change adding these 3 Nootropics together at these dosages for Kam. For him not to be able to do anything but breathe and eat to being able to do many things now is very exciting for us. Don’t know what Kam is capable of. But I won’t know if I don’t keep pushing him 💜
https://pubmed.ncbi.nlm.nih.gov/19944749/
https://www.webmd.com/vitamins/ai/ingredientmono-761/bacopa
https://www.sciencedirect.com/science/article/pii/S2225411020302170